Welcome to My BRCA Blog. I'm Amanda, I'm 30. When I was 28, I tested positive for the BRCA2 gene mutation increasing my risk of Breast Cancer up to 84% and my risk of Ovarian Cancer to 27%. I recently had a prophylactic mastectomy to reduce my risk. I am using this blog as a forum to express my feelings through this journey as well as to keep others in the loop. Newest entries are on top, scroll down or use the links on the side to see older posts.
Thursday, January 12, 2012
Preop Appointment Today
I pointed out the two little weird spots that I have that he confirmed are loose sutures, so if he can readily access them while he's in there, he'll get them out, otherwise they'll still be okay, they'll disolve over time. He also said I'd have the smaller drains this time, technically "Medium" drains, but they're small compared to the ones I had after the infection, so that will be nice! And he said I will very likely have them for a much shorter time period. YAY.
When I asked the nurse whether I should bring something like a breast binder, or a front closing sports bra, she said no, they would be putting something on me.. she's pretty sure a breast binder. My husband asked if they had something other than pink or blue... (since we currently have 2 blue and 1 pink...) she laughed and said no.. just pink or blue.. with flowers. Another pink one would be nice I guess, I (semi) joked with her that it would be nice to have white, or black.. you know something more neutral.. She didn't like the idea of white because of staining.. but thought black would be cool. Oh well, maybe someday she'll find herself in charge of ordering them and someone in the future will get a cool black breast binder! Seriously though.. who needs 4 breast binders?! And I'm guessing now that I'll end up with a 5th before I'm completely finished.
It really is somewhat of a pain to be allergic to 2 major groups of antibiotics. It is apparently quite limiting. So I'm hoping all goes well and there are no infections!
So, back to the time frame. I will go in at 9 am. I can't eat or drink past midnight, and have to do the special cleaning the night before and morning of, just like last time. I will probably be dying of thirst by time I reach the office (that's how it goes, when you're not allowed to drink.. suddenly your more thirsty than you've ever been in your life! Thats how it is for me anyway)
He said he will probably be operating a total of an hour and a half or so, but there is time on both sides for getting me in there and under general anesthesia and then finishing things up and getting me awake again. He estimated I would probably leave the office around 1:30 or 2. I'm a little nervous about this.. I've only had one outpatient surgery before and it was a seemingly much simpler breast biopsy... But if for some reason something doesn't' go right, the actual hospital is just right there... practically across the parking lot.
Nothing will go wrong though. I am confident. This will be as easy as we could hope for!
Monday, October 31, 2011
Drain Free...Again!
My drains were removed at my appointment today. Yay!!!
I told the nurse I really wanted them out and she obviously said something to the surgeon because he came in and said "so I hear there will be a rebellion if we don't take these drain out?" I said "maybe..." so he said we might compromise and checked things out, and thought it looked good so he gave the ok to the nurse to take them out.
On the down side (and this must be the compromise he mentioned) I have to wear my tightest breast binder (and make it tighter if possible) for another week. This is to make sure the breast skin firmly "sticks" to the chest wall which will somehow make things better when we go in to replace the expanders, its also important to not have "pockets" because pockets have greater potential to stow away bacteria, which could hang out there until the expander goes in and then cause another infection! I will do my best to follow his advise.. I did before too, but I am watching like a hawk! I pointed out a tiny red spot ony incision I've been watching and he said it was fine it's just a little irritated by the stitch that is there. He said if I have any fluid build up to call and they'll get me in right away and its really easy to just use a needle and draw it out. Otherwise, I will see him again Friday. This is 1 week since my surgery to remove my expanders and 4 weeks tomorrow since my mastectomy, this will be the longest I've gone between appointments. Having the drains out makes me a little nervous, but I'm on major antibiotics and I don't have any foreign body in me we need to hang on to, but man, I just imagine I will be super nervous when I have expanders again.
Anyway.. I should be drain free for a couple months now. And I am happy to say that removing them this time was no where near as unpleasant as I anticipated it being. I hardly felt it. Unfortunately it didn't improve my arm/underarm discomfort as much as I thought it would, but it did help a little. I guess these are going to be things that take time to resolve. Once everything is done I will request a referral for physical therapy if It's not fully back to normal by then.
I took a nap on the couch today and got up without much difficulty. I think tomorrow I will return to sleeping in bed, probably until the next surgery.
Happy Halloween!